Blecch:
My M-protein level has now increased from zero to 0.51 in just three months. When the CAR-T decided to stop working, my multiple myeloma didn't just saunter back, it roared back.
Tomorrow I see a doctor about possibly participating in a clinical trial. Afterwards, I'll have to decide whether to take a chance on that or to try a couple of drugs that are fully approved but haven't yet been part of my regimen. I'm leaning toward the latter, but I haven't yet gotten advice on this from anyone, so I may change my mind. In any case, it looks like I'll need to make a decision fairly quickly.
So sorry to hear that. Please know that we are all still rooting for you!
Well, heck. I am glad there are options out there for you. I am confident you will have success in knocking down the multiple myeloma again.
I am just so sorry to hear this...sometimes there is less fairness than there should be in this world...you deserve better. Still, you are gifted with a fine intelligence...sigh, but to be honest, this may or may not be enough....still you will always remain special, to all of us and we keep you in our prayers, (though I am not the praying type...lol) Best Wishes, and Good Luck, We Need You. Traveller
Sorry to hear about the setback Kevin. Hopefully the clinical trial or other drugs will get you back on track.
You have shown such resilience in dealing with circumstances that would leave most of us far. was functional than you, still determined to take & share photography that requires quite a bit of effort - not to mention travel here & abroad- that I suspect that your ability to face adversity by researching options, considering them with Marian & your doctors, you wi)l make the best decision. You withstand all of our comments, & so my feeling is that you will overcome this latest development, as well.
Well said.
Pulling for you Kevin.
Crap.
This is shitty news, Kevin. I hope the approved drugs will be the best solution.
Good luck, sir.
Big sigh. Grab a cat , that always helps…
Not a big fan of clinical trials here.
Dang it. We're all sending positive vibes to you.
No matter what your choice is Kevin, your fan club is always pulling for you. Good luck and hang in there.
A 10-year slog. My sympathy and hopes.
We all wish you well. Someone has to rub the cats' bellies.
As for the clinical trial, I'm sure your doctor will go over this--maybe make certain it's against the best available treatment.
Well, shit. Good luck, Mr. Drum. Rootin' for you all the way.
I don't know much about clinical trials, but I'd definitely read the fine print if it's a placebo controlled trial. Great for humanity, but would stink for you personally (and your loyal readers) to end up getting placebo treatment.
Hang in there, man.
Well, I'm sorry CAR-T wasn't permanent. I am glad your M-protein is still fairly low. Hopefully you can get back on drugs to manage it until a newer, better treatment pops up.
But thanks for sharing your journey on all of this.
And more - just want to say that this blog has been and will always be one of the highlights of my day, every day. Like a conversation with the smartest guy in the room, which makes me fell pretty smart just reading it. Cheers, kemosabe.
This is basically what I would have liked to say when all I could come up with was, "Crap." So thank you, ConradsGhost.
Oh man that sucks.
I am sorry, dude.
We are here to hear your sorrows and share your joys.
And the cats and the star photos. And charts. lots of charts.
So sorry to hear this, KD. Whichever choice you make, all the best.
So sorry you have to go through this--you deserve lovely days and nights of being with Marian and the cats, your great (roaring, super-able, mirthful) mind, landscapes of all kinds and objects (both living and inanimate) upon landscapes, statistics, photos/cameras, raw unstoppable joy . . . with great naps.
Rooting hard for you. You are invaluable to so many out here.
Wishing you all the best Kevin.
You're at the cutting edge of medical advances. I hope the next treatments in your sequence aren't too much of a pain.